Monday, June 13, 2011
TED Talks on Aging
Do you know about TED? TED talks are wonderful 15 minute introductions to all kinds of intellectual subjects. They're almost always fun, interesting and informative. This blog has an article with links to several TED talks on aging, including a couple about Alzheimer's Disease and related neurological illnesses. Take a look!
Monday, May 2, 2011
Reverse a Stroke by Taking Action Fast
A Facebook friend, Gary W. Bourbonais, wrote this as a service in honor of this month being Stroke Awareness Month. He says "it's worth it if it saves just one life."
Hi Folks....
Back on 12/27/07, I had a clot type stroke in the cortico-spinal area of my brain....I was left with a paralyzed right side, a vague awareness of what was going on, and a face out of a B-rated Horror
Movie.... Because of the extent of the paralysis, I was told I faced the prospect of assisted living...
That scared me more than anything....
Today, I am existing independently, though I need a brace and cane to get around.....My right hand (the prior dominant one) has maybe 20% function, with no fine motor control to speak of...Everything is
harder to do, essentially one handed, and I do get tired easily....
I'm not griping....I'm glad to be alive, and an independent Survivor....My cognition was essentially unaffected....My face is normal, as is my speech....I'm one of the luckier survivors.....
The thing is....had I recognized what was happening to me, I might have none of these affects.... For a clot type stroke, there's a 3-4 hour window when it can be reversed.....I got to the hospital too late to reverse it, but soon enough so I lived...
How common is stroke? It's the third most common cause of death in the US.....Eighty percent of all strokes are the clot type....There are over *6 million* stroke survivors in the US alone....
How to ID a stroke.......S....T....R.......
*REMEMBER* the 1st Three Letters.... S...T...R...
S.....Ask the individual to SMILE.
T.....Ask the person to TALK and SPEAK A SIMPLE SENTENCE
(Coherently). Example....It is sunny outside today....
R.....Ask him or her to RAISE BOTH ARMS.
If the person (or you), have a problem with any of these tasks, it's time to call 911...
A neurologist says that if he can get to a stroke victim within 3 hours he can totally reverse the effects of a stroke...totally. He said the trick was getting a stroke recognized, diagnosed, and then getting the patient medically cared for within 3 hours, which is tough.
They've recently extended the window to 4 hours in some cases...
NOTE: Another 'sign' of a stroke is this: Ask the person to 'stick' out their tongue.. If the tongue is 'crooked', if it goes to one side or the other, that is also an indication of a stroke.
Hopefully this bit of knowledge will help some folks in the future.......
Surviving a stroke takes a lot out of a person, both physically and mentally.....
How successful one is depends a lot on the support they have, and believe me, I can personally attest to the need for that support...And thank the folks that provided it to me, from the bottom of my heart...
I found a great online resource for Stroke Support.....It's a free site, started, run by, and for, Stroke Survivors and Caregivers....If you are a Stroke Survivor, or Caregiver, or know someone who is, give
them this link..... http://www.strokeboard.net/
I suspect they'll thank you....It puts you on the Forum discussion page, and you will meet folks who are walking the talk......As a guest, you can read the posts, to get a feel for what the site is about....
http://www.strokeboard.net/
***
F.A.S.T.
Another Anagram is F.A.S.T (Face, Arms, Speech, Time) If they have trouble smiling or something is not "right" with their *Face* (F), if they are unable to hold their *Arms*(A) out in front of themselves at equal height, if their *Speech*(S) is affected or if the words come out Slurred(S), then you need *Time*(T) to be on your side by responding quickly. Don't hesitate. It's better to be wrong than sorry.
***
Care to All....
Hi Folks....
Back on 12/27/07, I had a clot type stroke in the cortico-spinal area of my brain....I was left with a paralyzed right side, a vague awareness of what was going on, and a face out of a B-rated Horror
Movie.... Because of the extent of the paralysis, I was told I faced the prospect of assisted living...
That scared me more than anything....
Today, I am existing independently, though I need a brace and cane to get around.....My right hand (the prior dominant one) has maybe 20% function, with no fine motor control to speak of...Everything is
harder to do, essentially one handed, and I do get tired easily....
I'm not griping....I'm glad to be alive, and an independent Survivor....My cognition was essentially unaffected....My face is normal, as is my speech....I'm one of the luckier survivors.....
The thing is....had I recognized what was happening to me, I might have none of these affects.... For a clot type stroke, there's a 3-4 hour window when it can be reversed.....I got to the hospital too late to reverse it, but soon enough so I lived...
How common is stroke? It's the third most common cause of death in the US.....Eighty percent of all strokes are the clot type....There are over *6 million* stroke survivors in the US alone....
How to ID a stroke.......S....T....R.......
*REMEMBER* the 1st Three Letters.... S...T...R...
S.....Ask the individual to SMILE.
T.....Ask the person to TALK and SPEAK A SIMPLE SENTENCE
(Coherently). Example....It is sunny outside today....
R.....Ask him or her to RAISE BOTH ARMS.
If the person (or you), have a problem with any of these tasks, it's time to call 911...
A neurologist says that if he can get to a stroke victim within 3 hours he can totally reverse the effects of a stroke...totally. He said the trick was getting a stroke recognized, diagnosed, and then getting the patient medically cared for within 3 hours, which is tough.
They've recently extended the window to 4 hours in some cases...
NOTE: Another 'sign' of a stroke is this: Ask the person to 'stick' out their tongue.. If the tongue is 'crooked', if it goes to one side or the other, that is also an indication of a stroke.
Hopefully this bit of knowledge will help some folks in the future.......
Surviving a stroke takes a lot out of a person, both physically and mentally.....
How successful one is depends a lot on the support they have, and believe me, I can personally attest to the need for that support...And thank the folks that provided it to me, from the bottom of my heart...
I found a great online resource for Stroke Support.....It's a free site, started, run by, and for, Stroke Survivors and Caregivers....If you are a Stroke Survivor, or Caregiver, or know someone who is, give
them this link..... http://www.strokeboard.net/
I suspect they'll thank you....It puts you on the Forum discussion page, and you will meet folks who are walking the talk......As a guest, you can read the posts, to get a feel for what the site is about....
http://www.strokeboard.net/
***
F.A.S.T.
Another Anagram is F.A.S.T (Face, Arms, Speech, Time) If they have trouble smiling or something is not "right" with their *Face* (F), if they are unable to hold their *Arms*(A) out in front of themselves at equal height, if their *Speech*(S) is affected or if the words come out Slurred(S), then you need *Time*(T) to be on your side by responding quickly. Don't hesitate. It's better to be wrong than sorry.
***
Care to All....
Tuesday, March 8, 2011
Get "The Spiritual Journey of Family Caregiving" as an E-Book download
So I'm making my book available as an e-book download for just $4.99. What? Will she make any money at that price? I hope so! Especially if you tell your friends. Here's the link to my shop at Healing Communication Press. I hope to have it available for the Kindle as soon as I can, too and other venues as well. Watch this blog for updates.
Tuesday, December 7, 2010
Home for the Holidays -- Omigod!
I haven't written in this blog for months. My life is in great transition and writing anything just hasn't been on my priority list. But I suddenly noticed that, despite my lack of activity, hits to my blog suddenly jumped. Huh?
Oh yeah, people just got back from the Thanksgiving holiday. And, like millions of other people, they saw a beloved parent or other older relative they had not seen in a long time and were shocked.
Grandpa made a speech at the holiday feast thanking God that the family was "together for the first time in forty years!" Um...nobody said a thing but everyone knows the entire family had come together for his birthday just a few weeks before and many family gatherings over the years!
Nana seemed perfectly okay but then went shopping and brought back nothing but cookies, lettuce and pizza. So? Well, there was already too much lettuce in the frig, a cabinet full of the same cookies and a freezer full of frozen pizza. And Nana's response when she got home? "Oh look, dear! The children already bought pizza! Isn't that sweet?" But it wasn't true.
Auntie Anna's kitchen was filthy and she didn't seem to notice. Her bills were piled up on the dining room table, about four month's worth, and yet she denied that there was anything wrong.
So people came home and went to work. Is this dementia? What can we do?!!!
Yup, tis the season...
Okay, so first things first: calm down and breathe. And remember the most important things. Does something need to be done? Yes. Does it need to be done by you and you alone? Not likely.
Your first step: educate yourself. If your relative lives alone you will need to do something. Is there an Alzheimer's Association in his or her area? Contact the closest Area Agency on Aging. Or find the ones in your own community. They can direct you to any resources your relative might need. You don't have to figure this out alone!
In fact, you shouldn't. If there are any other family members involved check in with them. Compare notes, compare possibilities, educate yourselves and then decide on a plan of action.
And guess what? If your relative does not live alone there may or may not need to be anything done at all. If no one is in physical danger and there is someone taking care of the absolute necessities (the bills, for instance), the most important thing might be taking care of your own emotional upset. Yeah, it doesn't look good from the outside but, more often than not, people living together overcompensate for each other's difficulties, they overlook the little slips and idiosyncrasies, they do what has to be done and let the rest slide. It's shocking if you haven't seen Nana for a long time but if grandpa still seems to be handling it alright... Do check in but don't freak out if he says they don't need anything.
At least not what they'll accept for now. But they most likely will need help if not outright intervention as things continue to decline. So get help to know what kind of things to look out for, what resources may be nearby, and how you as a member of a larger group (family, community resources, etc.) can prepare for the time to come.
Oh yeah, people just got back from the Thanksgiving holiday. And, like millions of other people, they saw a beloved parent or other older relative they had not seen in a long time and were shocked.
Grandpa made a speech at the holiday feast thanking God that the family was "together for the first time in forty years!" Um...nobody said a thing but everyone knows the entire family had come together for his birthday just a few weeks before and many family gatherings over the years!
Nana seemed perfectly okay but then went shopping and brought back nothing but cookies, lettuce and pizza. So? Well, there was already too much lettuce in the frig, a cabinet full of the same cookies and a freezer full of frozen pizza. And Nana's response when she got home? "Oh look, dear! The children already bought pizza! Isn't that sweet?" But it wasn't true.
Auntie Anna's kitchen was filthy and she didn't seem to notice. Her bills were piled up on the dining room table, about four month's worth, and yet she denied that there was anything wrong.
So people came home and went to work. Is this dementia? What can we do?!!!
Yup, tis the season...
Okay, so first things first: calm down and breathe. And remember the most important things. Does something need to be done? Yes. Does it need to be done by you and you alone? Not likely.
Your first step: educate yourself. If your relative lives alone you will need to do something. Is there an Alzheimer's Association in his or her area? Contact the closest Area Agency on Aging. Or find the ones in your own community. They can direct you to any resources your relative might need. You don't have to figure this out alone!
In fact, you shouldn't. If there are any other family members involved check in with them. Compare notes, compare possibilities, educate yourselves and then decide on a plan of action.
And guess what? If your relative does not live alone there may or may not need to be anything done at all. If no one is in physical danger and there is someone taking care of the absolute necessities (the bills, for instance), the most important thing might be taking care of your own emotional upset. Yeah, it doesn't look good from the outside but, more often than not, people living together overcompensate for each other's difficulties, they overlook the little slips and idiosyncrasies, they do what has to be done and let the rest slide. It's shocking if you haven't seen Nana for a long time but if grandpa still seems to be handling it alright... Do check in but don't freak out if he says they don't need anything.
At least not what they'll accept for now. But they most likely will need help if not outright intervention as things continue to decline. So get help to know what kind of things to look out for, what resources may be nearby, and how you as a member of a larger group (family, community resources, etc.) can prepare for the time to come.
Tuesday, September 28, 2010
Alzheimer's Disease Cooperative Study
Image via WikipediaAre you or a family member experiencing the early signs of memory loss? Would you like to participate in research looking to put an end to Alzheimer's Disease?The newest thinking in the future of Alzheimer's treatment is to be able to detect changes in the brain in the earliest of stages, long before full-blown Alzheimer's symptoms appear. Reversing these brain changes -- or the behaviors or predisposing physical conditions that cause them -- is thought to be the best way to stop Alzheimer's. But the only way to recognize what these changes are and learn more about who is at risk is through the participation of volunteers.
“We cannot end this terrible disease unless we know more about it,” says Dr. Paul Aisen, M.D., director of the Alzheimer’s Disease Cooperative Study (ADCS). “That is where the amazing volunteers, their friends and their families can make the difference in our success.”
If you, a friend, or a family member is experiencing early signs of memory loss, you may be eligible to participate in a groundbreaking ADNI GO study. Please visit http://adcs.org/Studies/ImagineADNI.aspx or call the Alzheimer’s Disease Education and Referral Center at 1-800-438-4380 for more information on study sites in your area.
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